Rheum Round-up: ACR 2020 Coverage, How Reddit Users Shed Light on Mental Health in RA

Dr. Nowell Talks About RA Patient Engagement in Smartwatch Study Presented at ACR

Ben Nowell, PhD, Director of Patient-Centered Research at the Global Healthy Living Foundation and CreakyJoints Patient community, and Principal Investigator of the ArthritisPower research registry, discusses a study presented at the American College of Rheumatology (ACR) 2020 Convergence about patient engagement in studies that use a smartwatch to capture data. This study focused on patients with rheumatoid arthritis (RA).

Dr. Nowell Talks About RA Patient Engagement in Smartwatch Study

Reddit Users Provide Insight Into Mental Health Among People Living With RA

Researchers recently analyzed several threads on the website Reddit to garner a better understanding of the mental health experiences of people living with RA. The researchers used two subreddits—which are specific categories that are part of the Reddit site as a whole—“r/Thritis” and “r/Rheumatoid” to identify relevant threads using keywords including “mood,” “mental health,” “stressed,” “depressed,” and “anxious” from June 2018 through June 2019. The authors collected the threads’ title, original post, comments, and responses. Their search yielded 81 threads, and 27 were included in their analysis. Four themes were identified:

  • Navigating the management of RA
  • Experiencing impact on relationships and social isolation
  • Experiencing loss
  • Experiencing emotional struggles

The study was published in BMC Rheumatology.

Learn more about their findings here:

Reddit Users Provide Insight Into Mental Health Among People Living With RA

Dr. Maria Danila Discusses How the COVID-19 Pandemic Affected Patients with Autoimmune and Rheumatic Diseases

Patients with autoimmune and rheumatic diseases have been a population of concern during the COVID-19 pandemic. Several studies presented at the ACR 2020 Convergence discussed how the pandemic impacted these patients. Maria Danila, MD, MSc, MSPH, of the University of Alabama at Birmingham, a study author on three of these studies, discussed the findings with DocWire News.

Dr. Maria Danila Discusses How the COVID-19 Pandemic Affected Patients with Autoimmune and Rheumatic Diseases

John Ioannou, MD, PhD, Discusses axSpA Treatment Data Presented at ACR20

Several studies discussed during the ACR 2020 Convergence talked about axial spondyloarthritis (axSpA) and some of its treatments. John Ioannou, MD, PhD, Head of Medical Affairs Rheumatology at UCB, discussed research on CIMZIA and bimekizumab presented during the meeting.

John Ioannou, MD, PhD, Discusses axSpA Treatment Data Presented at ACR20