Abstract Perspective: Cancer surveillance awareness and practice among families at increased risk for pancreatic adenocarcinoma


“Many people who have watched a family member battle with pancreatic cancer have concerns about their personal risk, but may not know what they can do about it or may be too afraid to ask. Pancreatic cancer surveillance in high-risk individuals shows promise for detecting cancer early and improving survival, but that message is not being clearly communicated. We started asking our high-risk patients informally if their brothers and sisters were participating in pancreas surveillance, and had some interesting answers. That led us to formalize our questions and extend the inquiry to all at-risk relatives for every patient who came in to the clinic to help us better understand where the barriers might lie. We learned that only 20% of eligible relatives of high-risk patients were participating in surveillance, and that only 29% of relatives eligible for genetic testing had completed it. We hope these results lay the groundwork for interventions that will help high-risk patients and families get the recommended care they need.”

– Study author Jessica Everett, MS